Sarah, you continue to demonstrate such strength of character and lively fortitude as you wrestle with the wee beasties that have descended upon you. A temporary soporific for your symptoms whilst staying with this theme:
Wow I loved this (and also — not at all!!! but in a good way 😂). I relate to so much of it and this part made me emotional: "...the fear of my own body, but mostly the fear of needing people to believe me about what’s happening in it"
I've been managing chronic illness since I was a baby. It started off with my mom bringing me to any and every health practitioner imaginable (she is my #1 champion! Go moms!), and now that I'm a real grown adult human, the journey has continued with me as the driver. I figured by now I'd have found my person, my doctor, my health provider who cares about problem-solving this with me, but alas!
I've also been thinking so much about my body as so much more than just that, given I have a 10-month-old boy who is still nursing, AND we'd like to try for a second child at some point in the next year. My body has not been my own in ~20 months, and will continue to serve my children for many years to come (if we're lucky enough to have more), and STILL it is a nuisance to the medical establishment. It's baffling, and if I think about it too much, it hurts. I try to stay positive — but my goodness 🙈
Sarah, you continue to demonstrate such strength of character and lively fortitude as you wrestle with the wee beasties that have descended upon you. A temporary soporific for your symptoms whilst staying with this theme:
https://www.vudu.com/content/browse/details/Beach-Blanket-Bingo/140406
Post Script: My college friend Marcia Millman's book is interesting; Such Pretty Face by Marcia Millman
Wow I loved this (and also — not at all!!! but in a good way 😂). I relate to so much of it and this part made me emotional: "...the fear of my own body, but mostly the fear of needing people to believe me about what’s happening in it"
I've been managing chronic illness since I was a baby. It started off with my mom bringing me to any and every health practitioner imaginable (she is my #1 champion! Go moms!), and now that I'm a real grown adult human, the journey has continued with me as the driver. I figured by now I'd have found my person, my doctor, my health provider who cares about problem-solving this with me, but alas!
I've also been thinking so much about my body as so much more than just that, given I have a 10-month-old boy who is still nursing, AND we'd like to try for a second child at some point in the next year. My body has not been my own in ~20 months, and will continue to serve my children for many years to come (if we're lucky enough to have more), and STILL it is a nuisance to the medical establishment. It's baffling, and if I think about it too much, it hurts. I try to stay positive — but my goodness 🙈
Thank you for sharing ❤️
I also couldn't watch the Jacqueline Novak special because of the movement, even through I wanted to very much!
I am sorry you have landed in diagnosis limbo; I didn't enjoy my time there.